Family Life
Having a child or adult with PWS usually means that family life is somewhat different to other families, most notably around meal-planning and managing behaviour. However, depending on circumstances, this does not necessarily mean big changes, and introducing positive structures and boundaries can be very helpful.
As the child grows to adulthood, family life usually begins to extend more and more to community life, and interactions with non-family members may need careful management. Additionally, once a child leaves school, there is a strong likelihood of social services involvement, if this has not already been accessed by the family.
As the child grows to adulthood, family life usually begins to extend more and more to community life, and interactions with non-family members may need careful management. Additionally, once a child leaves school, there is a strong likelihood of social services involvement, if this has not already been accessed by the family.
The following links are sections from the PWS Journey. Families can obtain a hard copy of the whole PWS Journey, which is updated as their child reaches the next age range, by becoming a member of PERSATUAN SINDROM PRADER-WILLI MALAYSIA
Family Life
- Caring for yourself and other family members (PDF)
- Birth - 5 years (PDF)
- 5-13 years (PDF)
- 13-18 years (PDF)
- Grandparents (PDF)
- Information for Brothers and Sisters (PDF)
- Telling your child about PWS (PDF)
- Making a Will and setting up a Trust (PDF)
- Coming To Terms With Diagnosis (PDF)
- Government Allowances (PDF)