malaysiapws@gmail.com   +6012-339 5232           PERSATUAN SINDROM PRADER-WILLI MALAYSIA
 
 

Family Life

Family Life Family Life


Having a child or adult with PWS usually means that family life is somewhat different to other families, most notably around meal-planning and managing behaviour. However, depending on circumstances, this does not necessarily mean big changes, and introducing positive structures and boundaries can be very helpful.

As the child grows to adulthood, family life usually begins to extend more and more to community life, and interactions with non-family members may need careful management. Additionally, once a child leaves school, there is a strong likelihood of social services involvement, if this has not already been accessed by the family.


The following links are sections from the PWS Journey. Families can obtain a hard copy of the whole PWS Journey, which is updated as their child reaches the next age range, by becoming a member of PERSATUAN SINDROM PRADER-WILLI MALAYSIA


INTRODUCTION

PERSATUAN SINDROM PRADER-WILLI MALAYSIA creates awareness and provides accurate information among public citizen about Prader Willi Syndrome. We establish network of association with organization, agencies and professionals involves in providing treatments, trainings and education to the patients. Feel free to browse through our website for more details.
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PERSATUAN SINDROM PRADER-WILLI MALAYSIA

No. 132, Jalan Enggang, Taman Keramat, 54200 Kuala Lumpur, Selangor, Malaysia.
 
+6012-339 5232
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